Knowledge

Act on Health Sector Database

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The passing of this act spurred international discussion about what policies were already in place and what differences in policy existed among biobanks.
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Austin, M. A.; Harding, S.; McElroy, C. (2003). "Genebanks: A Comparison of Eight Proposed International Genetic Databases".
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to store health information which could be used for research. The act was noted for boldly introducing policy related to
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The establishment of a national database for all Icelandic citizens raised discussion about the nature of the
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which allowed the Icelandic government to grant a license to a private company for the creation of a national
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did most of the lobbying for the act and was the beneficiary of the license to create the database.
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Arnason, V. (2004). "Coding and Consent: Moral Challenges of the Database Project in Iceland".
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and in media by other colloquial names, was a 1998 act of the
77: 114: 184: 22:Act on Health Sector Database, No. 139/1998 71: 120: 185: 40:and was the subject of controversy. 13: 14: 244: 223:Science and technology in Iceland 178:World Health Organization summary 161: 135:10.1111/j.1467-8519.2004.00377.x 49: 1: 64: 18:Act on Health Sector Database 7: 10: 249: 26:Health Sector Database Act 61:process for the project. 198:Health law in Iceland 174:, English translation 208:Biological databases 203:Government databases 30:Icelandic Parliament 34:biological database 80:Community Genetics 92:10.1159/000069544 240: 173: 172: 170:Official website 155: 154: 118: 112: 111: 75: 59:informed consent 20:, also known as 248: 247: 243: 242: 241: 239: 238: 237: 228:1998 in Iceland 183: 182: 168: 167: 164: 159: 158: 119: 115: 76: 72: 67: 52: 44:deCODE genetics 12: 11: 5: 246: 236: 235: 230: 225: 220: 215: 210: 205: 200: 195: 181: 180: 175: 163: 162:External links 160: 157: 156: 113: 69: 68: 66: 63: 51: 48: 9: 6: 4: 3: 2: 245: 234: 231: 229: 226: 224: 221: 219: 216: 214: 211: 209: 206: 204: 201: 199: 196: 194: 191: 190: 188: 179: 176: 171: 166: 165: 152: 148: 144: 140: 136: 132: 128: 124: 117: 109: 105: 101: 97: 93: 89: 85: 81: 74: 70: 62: 60: 55: 50:Controversies 47: 45: 41: 39: 35: 31: 27: 23: 19: 213:Database law 129:(1): 27–49. 126: 122: 116: 86:(1): 37–45. 83: 79: 73: 56: 53: 42: 25: 21: 17: 15: 233:1998 in law 187:Categories 65:References 218:Databases 123:Bioethics 193:Biobanks 143:15168697 108:20931713 100:12748437 38:biobanks 151:7633275 149:  141:  106:  98:  24:, the 147:S2CID 104:S2CID 139:PMID 96:PMID 16:The 131:doi 88:doi 189:: 145:. 137:. 127:18 125:. 102:. 94:. 82:. 153:. 133:: 110:. 90:: 84:6

Index

Icelandic Parliament
biological database
biobanks
deCODE genetics
informed consent
doi
10.1159/000069544
PMID
12748437
S2CID
20931713
doi
10.1111/j.1467-8519.2004.00377.x
PMID
15168697
S2CID
7633275
Official website
World Health Organization summary
Categories
Biobanks
Health law in Iceland
Government databases
Biological databases
Database law
Databases
Science and technology in Iceland
1998 in Iceland
1998 in law

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