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before and after his accident. Now some of his closest friends feel the movie may forever obscure the truth of his life. They fear this collision between art and reality has created a revisionist history that is accepted by filmgoers around the world, and that this is what will remain in the collective cultural memory. For the first time, they are speaking publicly about it. As one of Bauby's friends says, "There's the Real Story. The Film. And the New Real Story."
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The film is said to be "based on a true story," which, of course, is from Bauby's book. The problem is that mixing his factually accurate journey through locked-in syndrome with a personal life that has been fictionalized for film has affected real people who were intensely involved in Bauby's life
335:
The film was criticized by Bauby's closest circle of friends as not faithful to events and biased in favor of his ex-partner Sylvie de la
Rochefoucauld. His late-life partner Florence Ben Sadoun was represented as shunning him after his stroke, although in reality she visited him frequently at the
33:
220:, in which the mental faculties remain intact but most of the body is paralyzed. In Bauby's case, his mouth, arms, and legs were paralyzed, and he lost 27 kilograms (60 lb) in the first 20 weeks after his stroke.
199:
Bauby was in a relationship with Sylvie de la
Rochefoucauld for ten years. They had a son and a daughter together. They separated when he began a relationship with Florence Ben Sadoun, also a journalist at
568:"Vagabondages immobiles d'un mort toujoursvivant. Totalement paralysé mais lucide, Jean-Dominique Bauby a "dicté" son livre en clignant d'une paupière. ""Le scaphandre et le papillon"". Ed. Robert Laffont"
243:. She recited the alphabet until Bauby blinked at the correct letter, and recorded the 130-page manuscript letter by letter over the course of two months, working three hours a day, seven days a week.
252:, was published on Friday, 7 March 1997. It went on to become a number one bestseller across Europe and its total sales are now in the millions. At the age of 44, Bauby unexpectedly died from
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while driving his son to a night out at the theatre. When he woke up in the hospital twenty days later, he could only blink his left eyelid. He had
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Before his stroke, Bauby had signed a contract to write a book. His speech therapist, Sandrine Fichou, arranged a
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129:; 23 April 1952 – 9 March 1997) was a French journalist, author and editor of the French fashion magazine
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389:"L'ultime clin d'oeil de Bauby. Le journaliste paralysé est mort juste après la sortie de son livre"
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where he lived during his final days. Bauby notes her visits in his memoir. Beth Arnold of
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as Bauby. Critically acclaimed, the film received the Best
Director Prize at
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died in 1974. At age 28, he was promoted to editor-in-chief of the daily
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for Best
Foreign Language Film and Best Director, as well as four
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734:"The real love story behind The Diving Bell and the Butterfly"
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The Diving Bell and the
Butterfly: A Memoir of Life in Death
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528:"The real story behind The Diving Bell and the Butterfly"
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589:"Elizabeth Day interviews ghost-writer Claude Mendibil"
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37:
Bauby, blinking, to Claude
Mendibil, transcribing, 1996
508:"Bauby's (Paris, 75004) : siret, TVA, adresse..."
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423:"The truth about "The Diving Bell and the Butterfly""
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543:
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26-letter alphabet according to the frequency of use
184:, before becoming editor of the cultural section of
549:"A Writer's Spirit Soared With a Blink of His Eye"
212:On 8 December 1995, at the age of 43, Bauby had a
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808:
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862:People with hypoxic and ischemic brain injuries
227:, so that he could dictate. Claude Mendibil, a
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764:The Diving Bell and the Butterfly - The Movie
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239:to take the dictation using a system called
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196:, and later became the magazine's editor.
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732:Di Giovanni, Janine (29 November 2008).
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270:The Diving Bell and the Butterfly (film)
190:. He then joined the editorial staff of
174:. He received his first by-line the day
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235:book editor, was sent by his publisher
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639:"Diving Bell movie's fly-away success"
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605:
480:Bauby, Jean-Dominique (23 June 1998).
451:"'Locked-in' quadriplegic shares life"
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151:, on Rue du Mont-Thabor, north of the
796:"Assigné à résidence (TV Movie 1997)"
774:"Cannes festival screening review of
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486:. Knopf Doubleday Publishing Group.
16:French journalist, author and editor
637:Thomas, Rebecca (8 February 2008).
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370:"Bauby, Jean-Dominique (1952-1997)"
13:
162:He began his journalism career at
14:
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832:Burials at Père Lachaise Cemetery
776:The Diving Bell and the Butterfly
757:
691:Freireich, Paul (26 April 1998).
606:Boyles, Denis (10 October 2003).
421:Arnold, Beth (23 February 2008).
387:Tassel, Fabrice (11 March 1997).
310:The Diving Bell and the Butterfly
249:The Diving Bell and the Butterfly
101:The Diving Bell and the Butterfly
73:Berck-sur-Mer, Nord-Pas de Calais
877:20th-century French male writers
867:French writers with disabilities
274:A few days after Bauby's death,
872:20th-century French journalists
852:French male non-fiction writers
837:Deaths from pneumonia in France
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663:Mallon, Thomas (15 June 1997).
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155:, living in the building where
887:People with locked-in syndrome
827:20th-century French memoirists
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449:Leslie Sowers (20 July 1999).
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300:In 2007, painter and director
1:
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374:Médiathèque de Saint hilaire
145:14th arrondissement of Paris
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260:cemetery in Paris, France.
149:1st arrondissement of Paris
10:
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312:adapted for the screen by
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83:Journalist, editor, writer
608:"Pre-Mortuarial Medicine"
288:Hôpital maritime de Berck
241:partner-assisted scanning
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665:"In the Blink of an Eye"
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126:[ʒɑ̃dɔminikbobi]
842:French magazine editors
511:entreprises.lefigaro.fr
278:featured the book, and
847:Lycée Condorcet alumni
614:Online. Archived from
566:GAUDEMAR, Antoine de.
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282:'s short documentary,
143:Bauby was born in the
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171:Le Quotidien de Paris
147:, and grew up in the
139:Early life and career
792:Jean-Jacques Beineix
322:Cannes Film Festival
280:Jean-Jacques Beineix
246:The resulting book,
118:Jean-Dominique Bauby
25:Jean-Dominique Bauby
857:Paris Match writers
326:Golden Globe Awards
286:about Bauby in the
284:Assigné à résidence
276:Bouillon de culture
882:Writers from Paris
783:Hollywood Reporter
595:. 27 January 2008.
534:. 9 February 2008.
218:locked-in syndrome
553:Los Angeles Times
461:on 2 October 2009
455:Houston Chronicle
181:Le Matin de Paris
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555:. 15 March 1997.
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457:. Archived from
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176:Georges Pompidou
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786:. 22 May 2007.
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316:. It starred
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96:Notable works
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53:23 April 1952
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798:– via
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743:. Retrieved
739:The Guardian
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532:the Guardian
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459:the original
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68:(1997-03-09)
66:9 March 1997
18:
822:1997 deaths
817:1952 births
395:(in French)
304:released a
291: [
229:ghostwriter
187:Paris Match
159:had lived.
811:Categories
572:Libération
493:0375701214
399:23 January
393:Libération
356:References
80:Occupation
49:1952-04-23
721:691949499
693:"Q and A"
428:Salon.com
343:Salon.com
254:pneumonia
233:freelance
168:and then
108:Children
88:Language
75:, France
58:, France
768:Miramax
346:notes:
122:French:
719:
490:
324:, and
214:stroke
208:Memoir
165:Combat
91:French
745:4 May
702:4 May
676:4 May
648:4 May
622:4 May
465:4 May
434:4 May
295:]
264:Films
56:Paris
800:IMDb
747:2014
717:OCLC
704:2014
678:2014
650:2014
624:2014
488:ISBN
467:2014
436:2014
401:2020
231:and
202:Elle
193:Elle
132:Elle
63:Died
43:Born
643:BBC
308:of
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580:^
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293:fr
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Text is available under the Creative Commons Attribution-ShareAlike License. Additional terms may apply.
