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625:. I'm not saying much, and you need to carry the discussion over those awkward silences. When I do speak, it's in a very monotone manner, like I don't really care. You try harder, and ask me questions, but I hesitate, I struggle to maintain eye contact, and I keep looking away, as if I'm making stuff up as I go.
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It's not all rainbows and unicorns, though. For example, autists like me are still very much clueless about politics and reading between the lines. We tend to be radically honest, which doesn't fly very well, whether online or offline. Autists are also more susceptible to trolling, and may not always
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What there is online, instead, is plenty of time, time that we can use to collect our thoughts and formulate a carefully crafted answer. Whereas voice is synchronous and mostly irreversible, text can be edited, crafted, deleted, reworded, or rewritten until it's exactly what we want it to be; then we
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The reverse is also true: Whenever humans are puzzled or annoyed by Spock, it is because they expect him to behave like a human; they are often confronted to a harsher truth than they would like. Humans interpret Spock's behavior through their own emotional perception filter. They often misunderstand
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because it portrayed a conflict between logic and emotion in a manner I could understand. A monster was attempting to smash the shuttle craft with rocks. A crew member had been killed. Logical Mr. Spock wanted to take off and escape before the monster wrecked the craft. The other crew members refused
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However, this model of computer-mediated communication is much closer to the communication model of autists like me. There is no nonverbal communication to decrypt; less interaction and social anxiety; and usually, no unfamiliar environment either. There are much fewer signals, and those that remain
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There are also many professional hurdles associated with being on the autism spectrum, and autists are more affected by unemployment than neurotypicals. I'm privileged in that I've been able to find an environment in which I'm able to work, but many autists aren't so lucky. It's been well documented
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Now this is what's happening from my perspective: I'm talking to someone I don't really know well, but you seem nice. I don't know what to talk about, so I keep quiet at first. Silences aren't a problem: I'm just happy to be in your company. I don't have very strong feelings about what we're talking
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The most common consequence I've noticed in my experience, and in accounts from other autistic people, is a feeling of profound isolation. The lack of Theory of mind and the constant risk of miscommunication make it difficult to build relationships. It's not anyone's fault in particular; it's due to
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When I first moved to the US, every time someone asked me "How are you?", I would pause to consider the question. Now, I've learned that it's a greeting, not an actual question, and I've mostly automated the response to the expected "Great, how are you?" It only takes a few milliseconds to switch to
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It took a bit longer (and a few tests) to get a confirmation from experts, and when it came, many people still had doubts. The question that came up the most often was "But how was this never detected before?" Autism is generally noticed at a much younger age, and it seemed that for most of my life,
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There is nothing wrong with autistic, ADHD, dyslexic, OCPD, etc. lives. If we were cured, it wouldn't suck just for us but it would suck for neurotypicals too. We are part of the rich blanket of life. Sure there are downsides to me being autistic and ADHD but there are positives too. It is who I am
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An interesting role reversal occurs sometimes in on-line conversation, which is worth remarking on. That is some neurotypicals will reply to the comment they think you made, or they think you wanted to make, or they think you should have made. This behaviour would usually be perfectly appropriate
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That's in addition to the problems I mentioned earlier. As an autist, it can be hard to let go of arguments about things or people you care about. It's often said that autistic people lack empathy, which basically makes us look like cold-hearted robots. However, there is a distinction between being
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Of course, one major example of wide-scale online communication is the
Wikimedia movement. And at first glance, Wikimedia sites, and Knowledge in particular, offer a platform where one can meticulously compile facts about their favorite obsession, or methodically fix the same grammatical error over
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With that in mind, imagine what the career opportunities (or lack thereof) can be for someone who is a terrible liar, who has a lot of interest in doing great work, but less interest in taking credit for it, who doesn't understand office politics, who not only makes social missteps and angers their
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Every day people make intuitive guesses regarding what someone may be thinking or feeling. Most of the time we are right but the system is not faultless. We are not perfect mind readers. Social interactions would be so much easier if typical people said exactly what they mean with no assumptions or
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As a Vulcan, Spock's life is ruled by logic. Although he does feel emotions, they are deeply repressed. His speech pattern is very detached, almost clinical. Because of his logical and utilitarian perspective, Spock often appears dismissive, cold-hearted, or just plain rude to his fellow shipmates.
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One caveat I want to start with is that autism is a spectrum. There's a popular saying among online autistic communities that says: "You've met an autist, you've met one autist." Just keep this in mind: What I'm presenting here is based on my personal experience, and isn't going to apply equally to
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The current prevailing hypothesis to explain this, based on an IQ test taken as part of the evaluation process, is that I am privileged to have higher-than-average intellectual capacities, which have allowed me to partly compensate for the different wiring of my brain. One way to illustrate this is
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these approaches produce a useable encyclopedia, and it's the commingling of different sensibilities and tempers that produces a community that gets fired up enough to do get the work done, while collectively self-restrained enough to do it well and fairly smoothly, especially given how close this
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I appreciate you sharing your story with the
Knowledge community, Guillaume. It takes courage to be vulnerable and share something that was previously only known to close friends and family. It's interesting to read how you perceive the world and I'm glad that Knowledge is well-suited to people of
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Wikipedians are obsessed with citations, references, and verifiability; fact is king, and interpretation is taboo. As long as you stay in the main namespace, that is. As soon as you step out of article pages and venture into talk pages and village pumps, those high standards don't apply any more.
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Nice piece. Far more
Wikipedians are somewhere on the autism spectrum (or however it's being redefined lately) that most editors realize. Same goes for the intersection of "Knowledge editor" and "obsessive–compulsive". A increase in tolerance toward what some editors view as "trivial" work, by
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I'm sitting down to change a lens on my camera, because it's a more stable position to avoid dropping and breaking expensive gear. I've learned that this habit of using very stable positions is actually a mitigating strategy that I developed over the years without realizing it, to compensate for
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As the essay pointed out, if someone wanted to create a honeypot for us autistic people, they couldn't get better than
Knowledge. I also believe Knowledge acts as a honeypot for other neurodivergent people (Knowledge is very appealing to OCPDers and other ADHDers). As you pointed out, a lot of
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spectrum. As I learned more about myself and the way my brain worked, I started to look at past experiences through the lens of this newly-found aspect. In this essay, I share some of what I’ve learned along the way about my successes, my failures, and many things that confused me in the past,
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In this example, and in many others, Spock's perception filter prevents him from understanding human decisions mainly driven by emotion. Those actions appear foolish or nonsensical, because Spock interprets them through his own lens of logic. He lacks the cultural background, social norms and
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I'm now 32 years old, and a lot has changed. Two years ago, after some difficulties at work, my partner decided to share his suspicions that I might be on the autism spectrum. I knew little about it at the time, but it was a hypothesis that seemed to explain a lot, and seemed worth exploring.
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Casual relationships with colleagues and acquaintances are usually superficial; the stakes of the water cooler discussions are low, so people are more inclined to forgive missteps. However, friendship is another matter, and for most of my life, I have hardly had any friends, unless you use
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If you apply this model to an oral conversation, you quickly see all the opportunities for miscommunication: From what the sender means, to what they actually say, to what the receiver hears, to what they understand, information can change radically, especially when you consider nonverbal
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As you can imagine, realizing at 31 that you are on the autism spectrum changes your perception dramatically; everything suddenly starts to make sense. I've learned a lot over the past two years, and this increased metacognition has allowed me to look at past events through a new lens.
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It wasn't that I didn't like them; it was because the school was much quieter than during weekdays, and I had all the toys to myself. I didn't have to interact with other children, or share the pencils, or the room. I could do whatever I wanted without worrying about the other kids.
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Neurotypical people have mirror neurons that make you feel what the person in front of you is feeling; autistic people have a lot fewer of those, which means they need to scrutinize your signals and try to understand what you're feeling. But they're still people with feelings.
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office asked me "How is your world?", and I froze for a few seconds. In order to answer that question, my brain was reviewing everything that was happening in "my world" (and "my world" is big!), before I realized that I just needed to say "Great! Thanks!".
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Sure, the subject had come up before a few times, but it was always as a joke, an exaggeration of my behavior. I never thought I fitted that label. One problem is that autism is usually represented in a very uniform manner in popular culture. Movies like
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There is a lot I didn't get into in this essay, and I might expand on specific points later. In the meantime, I'm available if you're interested in continuing this discussion, and you should feel free to reach out to me, whether in person or online.
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white male, and I was raised in a loving middle-class family in an industrialized country. By many standards, I'm very privileged. But, despite my superpowers, being autistic in a predominantly neurotypical society does bring its lot of challenges.
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For example, my first edit ten years ago was to fix a spelling error. My second edit was to fix a conjugation error. My third edit was to fix both a spelling and a conjugation error. That's how my journey as a
Wikipedian started ten years ago.
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in real-time verbal conversation, where body language feedback, speed of exchange and interruption provide governing mechanisms, but in an on-line text based conversation leads to either frustration, wildly erratic discussion, or conflict.
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realize that the way people act online isn't the same as the way they act in the physical world. The internet medium tends to desensitize people, and autists might emulate behavior that isn't actually acceptable, regardless of the venue.
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How the
Knowledge community interacts with those on the autism spectrum is an interest of mine, I believe we have needlessly alienated a number of good editors over the years, as well as a larger number of potentially good editors.
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As I mentioned earlier, I believe Spock was only able to build those relationships over time because people were aware of his difference, and learned to understand and embrace it. Spock also learned a lot from humans along the way.
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runs at a higher frequency, which has allowed me to emulate with software the hardware that I'm missing. What this also means is that it can be exhausting to run this software all the time, so sometimes I need to be by myself.
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feature autistic savants who, although they have extraordinary abilities, live in a completely different world, and sometimes aren't verbal. The autism spectrum is much more diverse than those stereotypical examples.
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Most of those issues arise because you don't have a way of knowing that the person in front of you is different. At least Spock had his pointed ears to signal that he wasn't human. His acceptance by the crew of the
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colleagues, but doesn't even know about it, someone who's unable to make small talk around the office. Imagine that person, and what kind of a career they can have even if they're very good at their job.
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But still, neurodiversity has a cost. Sometimes, you'll be offended; sometimes, you'll be frustrated; and sometimes, you'll think "Wow, I would never have thought of that in a million years".
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How is that different from talking? When people talk to each other, they never say what they mean, they say something else. And you're expected to just know what they mean. Only I never do.
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My goal here was to raise awareness of this difference that exists in our community, and encourage us to discuss our differences more openly, and to improve our understanding of each other.
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was in large part due to the relationships he was able to develop with his shipmates. Those relationships would arguably not have been possible if they had not known how he was different.
633:" thing that I learned in school is taking a lot of mental resources that would be better used to compute the answer to your question, so I sometimes need to look away to better focus.
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If this is the case for neurotypical people, meaning people with a "typical" brain, imagine how challenging it can be for autists like me. A great analogy is given in the movie
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Autistic people are characterized by many different traits, but one of the most prevalent is social blindness: We have trouble reading the emotions of others. We lack the "
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In this essay, I want to share with you some of what I've learned, and share my current understanding of how my brain works, notably through my experience as a
Wikimedian.
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Historical accuracy aside, one of my favorite moments in the movie is when a young Alan is talking to his friend
Christopher about coded messages. Christopher explains
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This illustrates one of many situations in which each person's perception filter caused a complete disconnect between how the situation was perceived on each side.
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Let me go back to that conceptual model of face-to-face communication. Now imagine how this model changes if you're communicating online, by email, on wiki, or on
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that path and short-circuit the question-answering process. But if people deviate from that usual greeting, then that mental shortcut doesn't work any more.
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Thank you
Guillaume for sharing this experience ! Very enlightening and personal. As someone close to several autistic people, I would recommend reaing
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can send it. This is true of asynchronous channels like email and wikis, but it also extends to semi-synchronous tools like instant messaging or IRC.
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After I started researching the topic, and reading books on autism or autobiographies by autistic people, I realized how much of it applied to me.
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I'm carrying two bags (a backpack and a photo bag), because I always want to be prepared for almost anything, so I carry a lot of stuff around.
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By autistic standards, the normal human brain is easily distractible, obsessively social, and suffers from a deficit of attention to detail.
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about, so I'm speaking very calmly. You're asking me questions, and of course it takes a while to think about the correct answer. All this "
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and a human mother, Spock is technically half-human, but it is his Vulcan side that shows the most in its interactions with the crew of the
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I didn't know it at the time, but it would take me nearly 30 years to look back at this story and understand how it made complete sense.
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I agreed with Spock, but I learned that emotions will often overpower logical thinking, even if these decisions prove hazardous.
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Thank you
Guillaume Paumier, this is very helpful and very interesting. I did also read the essay, which was also very helpful.
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This is only one of the challenges faced by autistic people, and I would now like to talk about neurotypical privilege. I'm a
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that people in higher-up positions aren't necessarily the best performers, but often people with the best social skills.
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In many ways, Spock's traits are similar to autism, and many autistic people identify with him. For example, in her book
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status, while others think it's more important to ensure a professional presentation even in stub-level articles.
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and over, all of that with limited human interaction; if this sounds like a great place for autists (and a perfect
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I had managed to disguise myself as "neurotypical", meaning someone whose brain works similarly to most people.
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his motives, assume malice, and superimpose intents that change the meaning of his original words and actions.
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Imagine that you're talking to me face to face. You don't really know me, but I seem nice so you start making
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are just words; their meaning still varies, but it's much more codified and reliable than nonverbal signals.
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A good analogy to help understand what it's like to be autistic in a neurotypical society is to look at Mr.
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I'm wearing simple clothes, because I have absolutely no sense of fashion, and those are "safe" colors.
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One way to understand neurodiversity is to think in terms of human operating systems: Just because a
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284:) and a few other people. Looking back at this picture now, there are a few things I notice today:
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My life as an autistic Wikipedian: Two years ago, I discovered that I was on the autism spectrum.
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Many languages have a common phrase to ask someone how they're doing, whether it's the French
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as "messages that anyone can see, but no one knows what they mean, unless you have the key."
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There are plenty of unsourced, exaggerated and biased statements in Knowledge discussions.
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If you're interested in learning more about autism in the Wikimedia community, there's
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Awesome piece! Taught me a few things about how different minds work. Thanks a lot. --
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Some of the funniest moments of the show are his arguments with the irascible
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to leave until they had retrieved the body of the dead crew member.
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and if I was cured of my neurodivergence I wouldn't exist anymore.
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Guillaume Paumier is a Senior Analyst with the Wikimedia Foundation
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You wouldn’t need a Theory of Mind if everyone spoke their mind.
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Young Adults With Autism More Likely To Be Unemployed, Isolated
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Wow. That was an amazing read; thank you so much for sharing,
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At age 4, I was in nursery school, the French equivalent of
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This article, the basis for his talk of the same name at
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entire project is to some postmodern form of anarchism.
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Knowledge:High-functioning autism and Asperger's editors
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offering a tribute to the late Leonard Nimoy aboard the
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Many people with autism are fans of the television show
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Get the latest headlines on your user page – just add
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communication. It's like a 2-person variation of the
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unspoken assumptions unconsciously shared by humans.
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notably in my experiences in the Wikimedia movement.
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Steve Silberman. "The forgotten history of autism".
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189:Two years ago, I discovered that I was on the
299:problems with balance and motor coordination.
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1038:different talents. Thanks for pointing out
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1078:Thanks Guillom. Your story is inspiring!
886:The Complete Guide to Asperger's Syndrome
873:The Complete Guide to Asperger's Syndrome
884:Liane Holliday Willey, in Tony Attwood,
253:to use a computer analogy: in a way, my
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18:Knowledge:Knowledge Signpost
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1243:07:07, 17 August 2015 (UTC)
782:International Space Station
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588:Privilege and pointed ears
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1006:Discuss this story
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481:The Imitation Game
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45:← Back to Contents
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981:In the media
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959:all comments
953:29 July 2015
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57:29 July 2015
1292:Suggestions
1173:SMcCandlish
1153:WP:Civility
1133:le Korrigan
1013:transcluded
631:eye contact
486:Alan Turing
469:ambiguity.
366:one episode
1208:Farmbrough
846:References
776:astronaut
760:Conclusion
723:honey trap
658:Enterprise
623:small talk
570:Wie geht's
354:Enterprise
83:Share this
78:Contribute
22:2015-07-29
1286:Subscribe
1224:Star Trek
1149:WP:GNOMEs
1113:Hispalois
1099:Invertzoo
1017:talk page
932:"Op-ed" →
837:. \\///
394:Star Trek
362:Dr. McCoy
344:Star Trek
331:Star Trek
1305:Category
1281:Newsroom
1276:Archives
1165:Together
1161:Featured
875:. p.126.
862:. p.152.
737:able to
650:Facebook
282:Bastique
238:Rain Man
125:LinkedIn
105:Facebook
20: |
1065:Cwobeel
1060:Guillom
888:, p.126
806:Windows
317:Spock (
115:Twitter
1070:(talk)
425:Autism
364:. In
321:) and
278:Taipei
191:autism
135:Reddit
95:E-mail
1271:About
971:Op-ed
918:2015.
339:Spock
304:Spock
212:Today
69:Op-ed
16:<
1266:Home
1205:Rich
1155:and
1117:talk
1103:talk
930:Next
323:Kirk
169:blog
145:Digg
1187:ⱷ≼
1183:≽ⱷ҅
1138:bla
916:TED
903:NPR
901:".
774:ESA
681:IRC
611:cis
276:in
255:CPU
153:By
80:—
1307::
1258:}}
1252:{{
1241:)
1237:|
1170:—
1119:)
1105:)
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1233:(
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1185:ᴥ
1181:¢
1178:☏
1175:☺
1136:→
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1081:J
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1034:.
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