38:
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387:, the NHGRI dedicated 5% of its annual budget to explore the ethical, legal, and social implications of genomic research. This program's current priorities focus on the ethical applications of genomics to as it applies to communities, families, and individuals in areas such as healthcare, research, defense, intellectual property, regulation, policy, and larger social issues. In 2004 the ELSI program established several Centers for Excellence in ELSI research (CEER). It was funded with substantial contributions from the U.S.
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277:
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NHGRI is organized into seven divisions and the Office of the
Director. Four of these divisions support extramural research (the grant-giving side), one coordinates the intramural (on-campus) research arm of the institute, one deals with administration, management, and budget, and one serves as the
190:
October 1, 1988 â The Office for Human Genome
Research is created within the Office of the Director, National Institutes of Health (NIH). Also, NIH and the Department of Energy (DOE) sign a memorandum of understanding to "coordinate research and technical activities related to the human
204:
April 2003 â The
National Human Genome Research Institute (NHGRI) celebrates the completion of the human genome sequence, the 50th anniversary of the description of the DNA double helix and the publication of the vision document for the future of genomics
436:
This center is focused on equitable distribution and use of translational genome research in underserved and marginalized communities. CGHE has several cores working to address different lenses of
246:, M.D., Ph.D. to be director of The National Human Genome Research Institute. It is the first time an institute director has risen to lead the entire NIH and subsequently picked his own successor.
149:
159:(DHHS) renamed NCHGR the National Human Genome Research Institute (NHGRI), officially elevating it to the status of research institute â one of 27 institutes and centers that make up the NIH.
969:
148:. In 1993, NCHGR expanded its role on the NIH campus by establishing the Division of Intramural Research (DIR) to apply genome technologies to the study of specific diseases. In 1996, the
440:, genomic research, and outreach education. These cores include the Partnership core, the Genome Sciences core, the Healthcare Decision-making core and the Indigenous Genomics Alliance.
919:
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448:
The NHGRI is publicly funded. In support of moving to a translational model, the NHGRI published their funding mechanisms for ELSI research. FY 2020 NIH funding was $ 650.6 million.
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778:
395:. CEER centers have a common focus on the ethical, social, and legal implications resulting from the advances in genomic research.
152:(CIDR) was also established (co-funded by eight NIH institutes and centers) to study the genetic components of complex disorders.
53:
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in April 2003, but there were still gaps remaining until the release of T2T-CHM13 by the
Telomere-to-Telomere Consortium.
128:
NHGRI began as the Office of Human Genome
Research in The Office of the Director in 1988. This Office transitioned to the
1267:
1232:
1106:
1014:
705:
388:
141:
137:
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to launch the
Multiplex Initiative, a study to investigate the interest level of healthy, young adults in receiving
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School of
Medicine's Center for Integration of Research on Genetics and Ethics; Mildred Cho, Ph.D., $ 3.8 million
184:
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808:
118:
91:
1055:
235:
steps down as director of the institute after serving for fifteen of the nineteen years of its operation.
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209:
405:
University's Center for
Genetic Research Ethics and Law (CGREAL); Eric Juengst, Ph.D., $ 5.3 million
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37:
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Nurk S, Koren S, Rhie A, Rautiainen M, Bzikadze AV, Mikheenko A, et al. (March 31, 2022).
343:
236:
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1101:
175:
public-facing side of the institute housing the communications, policy, and education teams.
17:
883:
542:
402:
384:
302:
735:"NHGRI Launches Centers for Excellence in Ethical, Legal and Social Implications Research"
8:
1184:
631:"Francis S. Collins to Step Down as Director of National Human Genome Research Institute"
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460:, chief and senior investigator of the Translational and Functional Genomics Branch
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Institute of the
National Institutes of Health, located in Bethesda, Maryland, US
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and
Director of the Coordinating Center for the NHGRI Genome Sequencing Program
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sequencing begins with pilot studies at six universities in the United States.
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713:
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67:
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has been appointed acting director while a new permanent director is sought.
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May 4, 2007 â The National Human Genome Research Institute (NHGRI) and the
195:
163:
145:
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457:
429:
1226:
1154:
337:
970:
National Institute of Arthritis and Musculoskeletal and Skin Diseases
613:"Study to Probe How Healthy Younger Adults Make Use of Genetic Tests"
756:
753:"Welcome to the Center for Genomics and Healthcare Equality | CGHE"
878:
276:
221:
995:
National Institute of Diabetes and Digestive and Kidney Diseases
985:
National Institute on Deafness and Other Communication Disorders
506:"The NIH is turning the human reference genome into a pangenome"
201:
March 1999 â Large-scale sequencing of the human genome begins.
832:
648:
staff (2008-06-15). "Francis Colins to Leave NHGRI August 1".
913:
1020:
National Institute on Minority Health and Health Disparities
975:
National Institute of Biomedical Imaging and Bioengineering
861:
101:
688:"Ethical, Legal and Social Implications Research Program"
162:
The institute announced the successful sequencing of the
1066:
National Center for Complementary and Integrative Health
980:
National Institute of Child Health and Human Development
393:
National Institute of Child Health and Human Development
1025:
National Institute of Neurological Disorders and Stroke
528:
140:(HGP). The HGP was developed in collaboration with the
1248:
National Institutes of Health Director's Pioneer Award
990:
National Institute of Dental and Craniofacial Research
965:
National Institute of Allergy and Infectious Diseases
157:
United States Department of Health and Human Services
82:
United States Department of Health and Human Services
1071:
National Center for Advancing Translational Sciences
1005:
National Institute of Environmental Health Sciences
136:), in 1989 to carry out the role of the NIH in the
960:National Institute on Alcohol Abuse and Alcoholism
1322:
813:GEN - Genetic Engineering and Biotechnology News
593:National Human Genome Research Institute (NHGRI)
428:'s Center for Genomics and Healthcare Equality;
31:National Human Genome Research Institute (NHGRI)
1010:National Institute of General Medical Sciences
466:, chief of the Molecular Neurogenetics Section
1081:National Institutes of Health Clinical Center
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503:
1097:Advanced Research Projects Agency for Health
651:Genetic Engineering & Biotechnology News
806:
169:
1331:Genetics or genomics research institutions
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892:
36:
945:National Heart, Lung, and Blood Institute
564:
554:
531:"The complete sequence of a human genome"
416:; Robert Cook-Deegan, M.D., $ 4.8 million
130:National Center for Human Genome Research
950:National Human Genome Research Institute
809:"Top 50 NIH-Funded Institutions of 2020"
144:(DOE) and began in 1990 to sequence the
111:National Human Genome Research Institute
1346:Medical research institutes in Maryland
54:Federal government of the United States
14:
1323:
1258:National Center for Research Resources
1030:National Institute of Nursing Research
833:"Matise Lab of Computational Genetics"
887:
647:
150:Center for Inherited Disease Research
1263:National Institutes of Health Police
1243:National Institutes of Health campus
1061:John E. Fogarty International Center
472:, Head of Computational Genetics at
1268:Office of Laboratory Animal Welfare
1233:United States Public Health Service
1107:National Diabetes Education Program
1015:National Institute of Mental Health
255:Past directors from 1989 - present
24:
142:United States Department of Energy
138:International Human Genome Project
25:
1357:
1051:Center for Information Technology
853:
776:
712:. August 31, 2004. Archived from
504:Samorodnitsky, Dan (2020-11-09).
480:Talking Glossary of Genetic Terms
250:
242:November 17, 2009 â NIH Appoints
1000:National Institute on Drug Abuse
807:Philippidis, Alex (2020-09-21).
357:
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1341:1989 establishments in Maryland
1238:Division of Intramural Research
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185:List of events in NHGRI history
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1336:National Institutes of Health
1281:indicate acting officeholders
916:National Institutes of Health
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119:National Institutes of Health
92:National Institutes of Health
1056:Center for Scientific Review
1035:National Library of Medicine
755:. 2016-03-04. Archived from
432:, M.D., Ph.D., $ 4.7 million
228:for eight common conditions.
7:
955:National Institute on Aging
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398:The initial centers were
10:
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935:National Cancer Institute
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210:National Cancer Institute
117:) is an institute of the
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1253:NIH Public Access Policy
426:University of Washington
412:Center for the Study of
218:Henry Ford Health System
214:Group Health Cooperative
212:(NCI), have teamed with
170:Organizational structure
1165:James Augustine Shannon
1076:Vaccine Research Center
706:"CGHE as a CEER | CGHE"
556:10.1126/science.abj6987
383:In 1990 as part of the
102:https://www.genome.gov/
1160:William H. Sebrell, Jr
940:National Eye Institute
656:Mary Ann Liebert, Inc.
485:Human reference genome
344:Alan Edward Guttmacher
237:Alan Edward Guttmacher
1307:39.00037°N 77.10335°W
1180:Donald S. Fredrickson
1102:Visible Human Project
710:depts.washington.edu
403:Case Western Reserve
389:Department of Energy
385:Human Genome Project
303:Michael M. Gottesman
1312:39.00037; -77.10335
1303: /
1185:James B. Wyngaarden
837:compgen.rutgers.edu
779:"Concept Clearance"
547:2022Sci...376...44N
420:Stanford University
32:
1210:Monica Bertagnolli
474:Rutgers University
438:health disparities
233:Francis S. Collins
123:Bethesda, Maryland
30:
1286:
1285:
1170:Robert Q. Marston
1150:Lewis R. Thompson
1135:Milton J. Rosenau
1130:Joseph J. Kinyoun
670:"NHGRI Directors"
376:
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194:April 11, 1996 â
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78:Parent department
16:(Redirected from
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1140:John F. Anderson
1112:BRAIN Initiative
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862:Official website
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637:. May 28, 2008.
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414:Public Genomics
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324:Francis Collins
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231:May 28, 2008 â
226:genetic testing
216:in Seattle and
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45:Agency overview
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676:. 9 July 2015.
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1175:Robert Stone
949:
840:. Retrieved
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812:
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790:. Retrieved
785:
777:NHGRI, NIH.
772:
761:. Retrieved
757:the original
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729:
718:. Retrieved
714:the original
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513:. Retrieved
509:
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447:
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397:
382:
379:CEER centers
349:August 2008
331:August 2008
283:James Watson
270:Left office
267:Took office
254:
173:
164:human genome
161:
155:In 1997 the
154:
146:human genome
133:
129:
127:
114:
110:
108:
50:Jurisdiction
1310: /
674:www.nih.gov
470:Tara Matise
458:Julie Segre
430:Wylie Burke
328:April 1993
311:April 1993
308:April 1992
290:April 1992
1325:Categories
1298:77°06â˛12âłW
1295:39°00â˛01âłN
1227:NIH Record
1155:Rolla Dyer
928:Institutes
879:NHGRI CEER
842:2021-10-19
818:2021-04-25
786:NHGRI CEER
763:2019-12-07
739:Genome.gov
720:2020-01-22
692:Genome.gov
658:p. 7.
635:Genome.gov
617:Genome.gov
598:2018-06-02
515:2021-01-15
491:References
70:, Director
1122:Directors
869:CGHE CEER
654:(print).
346:(acting)
305:(acting)
264:Director
261:Portrait
205:research.
196:Human DNA
1090:Programs
792:30 April
575:35357919
452:See also
391:and the
372:Present
191:genome."
1279:Italics
1219:Related
1044:Centers
788:. NHGRI
566:9186530
543:Bibcode
535:Science
444:Funding
222:Detroit
179:History
98:Website
573:
563:
914:U.S.
875:copy)
782:(PDF)
287:1989
134:NCHGR
115:NHGRI
18:NHGRI
920:list
794:2012
571:PMID
410:Duke
408:The
109:The
66:Dr.
561:PMC
551:doi
539:376
220:in
125:.
1327::
835:.
811:.
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708:.
690:.
672:.
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922:)
918:(
907:e
900:t
893:v
871:(
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